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Hemophilia:     more books (101)

Haemophilia: Proceedings of the IX Congress of the World Federation of Haemophilia, Istanbul, 20-22 August, 1974 (International congress series) by World Federation of Hemophilia, 1975 Pooling Blood: A journey of two girls with hemophilia and their parents' struggle to keep them alive by Cheryl Nineff D'Ambrosio, 2010-02-22 Handbook on hemophilia and other bleeding disorders by dr syed numan, 2010-01-08 Curtis & Jerry on Mount Omega (Adventures with Hemophilia) by Celynd Scaglione, 2006 Cell Genesys obtains results from preclinical hemophilia gene therapy studies.(Brief Article): An article from: BIOTECH Patent News Minutes of the patients. Hemophilia. / Protokol vedeniya bolnykh. Gemofiliya. by unknown, 2006 Hemophilia and Hemophilioid Diseases Gale Encyclopedia of Medicine: Hemophilia by Jennifer F. Wilson MS, 2002-01-01 People With Hemophilia: Ryan White, Jason Robertson, Alexei Nikolaevich, Tsarevich of Russia, Prince Leopold, Duke of Albany, Alfonso Vox Sanguinis (Viral Safety of Plasma-Derived Replacement Factors for Hemophilia , Vol 67, Suppl 4) by P. M. Mannucci, 1994-12 Hemophilia,: Clinical and genetic aspects, (Illinois medical and dental monographs) by Carroll L Birch, 1937 Raising a Child with Hemophilia: A Practical Buide for Parents by by Laureen a Kelley, 1999-01-01 21st Century Ultimate Medical Guide to Hemophilia - Authoritative Clinical Information for Physicians and Patients (Two CD-ROM Set) by PM Medical Health News, 2009-05-08 Encyclopedia of Family Health; Vol 5: Flotation Therapy - Hemophilia by Jacoby David B, 1998

lists with details

61. Hemophilia Symptoms, Causes, And Treatment By MedicineNet.com
    Learn about hemophilia, one of a group of inherited bleeding disorders. Symptoms of hemophilia include bleeding into the joints, muscles, GI or urinary tract, or brain or skull.  
    http://www.medicinenet.com/hemophilia/article.htm
    
    Extractions: About Us Site Map November 14, 2010 Breast Cancer A Visual Guide to Breast Cancer View Slideshow Picture of Psoriasis A reddish, scaly rash often located over the surfaces of the elbows, knees, scalp, and around or in the ears, navel, genitals or buttocks... View Image Gallery Get the Facts View Slideshow home hemophilia index hemophilia article Font Size A A A Medical Editor: Charles C. P. Davis, MD, PhD Hemophilia is not one disease but rather one of a group of inherited bleeding disorders that cause abnormal or exaggerated bleeding and poor blood clotting. The term is most commonly used to refer to two specific conditions known as hemophilia A and hemophilia B, which will be the main subjects of this article. Hemophilia A and B are distinguished by the specific gene that is mutated (altered to become defective) and codes for a defective clotting factor (protein) in each disease. Rarely, hemophilia C is encountered, but its effect on clotting is far less pronounced than A or B. Hemophilia A and B are inherited in an X-linked recessive genetic pattern and are therefore much more common in males. This pattern of inheritance means that a given gene on the X chromosome expresses itself only when there is no normal gene present. For example, a boy has only one X chromosome, so a boy with hemophilia has the defective gene on his sole X chromosome (and so is said to be hemizygous for hemophilia). Hemophilia is the most common X-linked

62. The Arizona Hemophilia Association
    Information and services for those living with hemophilia-related HIV/AIDS and other coagulation disorders.  
    http://www.hemophiliaz.org/
    
    Extractions: The Arizona Hemophilia Association is dedicated to enhancing the quality of life for people with inherited bleeding disorders, while advocating for a cure. Please Help Make a Difference. Camp HONOR is a camp specifically for children with an inherited bleeding disorder, their siblings and children with HIV ages 8-17. My Nana's Best Tasting Salsa Challenge is a statewide culinary festival showcasing popularity of our #1 condiment in the U.S.: SALSA! April 9,2011. The Arizona Desert Classic is a great day of incredible golf with fun, interactive games and a dinner reception. The Annual Hemophilia Walk is sprinting into your neighborhood! We invite you and your family to participate in this fabulous fundraising event! The Arizona Hemophilia Association is dedicated to enhancing the quality of life in the inherited bleeding disorder community by providing programs and services that offer emotional, financial and educational assistance and support. We advocate and create awareness to promote and protect access to healthcare for the bleeding disorder community. We bring together individuals and families of all ages to promote the sharing of experiences and information. Arizona Hemophilia Association

63. Children's Memorial Hospital (Chicago, IL)
    Children's Memorial Hospital, Chicago, one of the top pediatric hospitals in the country, leads in patient care, education, research and advocacy. Its physicians are faculty  
    http://www.childrensmemorial.org/depts/cancer/hemophilia.aspx
    
    Extractions: In the United States, about 20,000 people have hemophilia. People of all races and economic groups are equally affected. Each year, about 400 babies are born with hemophilia. The most common forms of hemophilia result from deficiencies of clotting factor proteins, factor VIII and factor IX. Both Factor VIII and Factor IX are necessary to form a clot. The most common symptom of hemophilia is excessive, uncontrollable bleeding. Patients with hemophilia do not bleed faster than normal children; they bleed for a longer time. The severity of symptoms in children with hemophilia depends on the severity of the disease. Severe hemophilia is when factor VIII or factor IX clotting factor activity is less than 1 percent. Moderate hemophilia is when factor VIII or IX clotting factor activity is 1-5 percent.

64. Hemophilia Foundation Of IL
    Supports those affected by hemophilia, related bleeding disorders, and complications of these disorders or their treatment. Activities and events, programs and services offered are featured. Offices in Chicago.  
    http://www.hemophiliaillinois.org/
    
    Extractions: e-mail List First Name: Last Name: Email Address: required H EMOPHILIA F OUNDATION OF I LLINOIS Bleeding Disorders About Us The Hemophilia Foundation of Illinois is an organization dedicated to improving the quality of life for persons affected by hemophilia and other inherited bleeding disorders, and complications of these disorders or their treatment. The Hemophilia Foundation of Illinois provides and promotes Advocacy, Consumer Services, Education and Research. We are a not-for-profit 501(c)(3) organization and members of the National Hemophilia Foundation, the Hemophilia Federation of America, and Community Health Charities. H FI IS M OVING! The Hemophilia Foundation of Illinois has left the office on 332 S. Michigan Ave for the new facility at 210 S. Des Plaines St. Chicago, IL 60661, which will be completed by December. While the new office is being completed, HFI staff will be available via e-mail and by telephone. (312) 427-1495 During this time of transition, our operations will not change and HFI will still be serving the Illinois bleeding disorder community to its fullest by furthering the mission.

65. Hemophilia: Symptoms - MayoClinic.com
    hemophilia — Comprehensive overview covers symptoms, causes and treatment of this bloodclotting disorder.  
    http://www.mayoclinic.com/health/hemophilia/DS00218/DSECTION=symptoms

66. Researchers And Healthcare Providers
    Recommendations approved by the Medical and Scientific Advisory Council (MASAC) of the National hemophilia Foundation regarding the use of therapeutic ultrasound to aid in blood resorption.  
    http://www.hemophilia.org/research/masac/masac130.htm
    
    Extractions: Search: NHF Membership Go to my NHF Subscribe to eNotes Donate to NHF ... The Partners in Bleeding Disorders Education Program Researchers and Healthcare Providers There's a wide range of resources for Researchers, Medical and Healthcare Professionals, including: Fellowships and Grants Career Development Award - awarded to fund innovative research studies that investigate promising treatments and cures for bleeding disorderes and assist in promoting basic, pre-clinical and clinical research. Judith Graham Pool Postdoctoral Research Fellowship - awarded to a postdoctoral fellow was developed to promote research into bleeding disorders and to provide vital insights into the complexities of hemophilia and related disorders. NHF-Baxter Clinical Fellowship - awarded through a program exclusively sponsored by Baxter BioScience to help educate and train doctors to provide comprehensive care for people with bleeding and clotting disorders. Nursing Excellence Fellowship - awarded to provide support to practitioners to conduct research or clinical projects in the field of bleeding disorders. Social Work Excellence Fellowship - awarded to provide support to practitioners to conduct research or clinical projects in the field of bleeding disorders.

67. Genome.gov | Learning About Hemophilia
    Learning About hemophilia. What is hemophilia? What are the symptoms of hemophilia? How is hemophilia diagnosed? What is the treatment for hemophilia?  
    http://www.genome.gov/20019697

68. Hemophilia & HIV/AIDS - The Body
    A collection of resources related to hemophiliacs and HIV, including topics such as the safety of the blood supply and tained blood products, from The Body.  
    http://www.thebody.com/index/whatis/hemophilia.html

69. Commercial Director, Hemophilia Channel Development : Waltham MA : Naturejobs
    A US Department of Health and Human Service project providing information on genetic and rare diseases. A comprehensive body of resources on hemophilia  
    http://www.nature.com/naturejobs/science/jobs/168114-Commercial-Director-Hemophi
    
    Extractions: The Commercial Director of Hemophilia Channel Development will be responsible for the development of an Access Strategy for the recombinant long-acting Factor IX (rFIXFc) and Factor VIII (rFVIIIFc) programs in clinical development with special focus on the US market. This Commercial Director will be the architect for the long-range Global Access Plan for the brands ensuring that we maximize both brands in the US and ROW . As a senior leader within the organization, this individual will lead the hemophilia franchise in numerous cross-functional projects and programs working with several functional departments within the Biogen Idec organization. They must also be able to work collaboratively with other the Commercial Directors within hemophilia team to grow Biogen Idec into a market leader in hemophilia. This individual will utilize their industry experience to make sound business decisions and provide the needed recommendations to key stakeholders throughout the organization to achieve the overall brand goals.

70. Hemophilia Group
    http://csws.tokyo-med.ac.jp/csws/hemophilia/

71. Hemophilia-Topic Overview
    What is hemophilia? It is a rare genetic bleeding disorder that almost always occurs in males.  
    http://www.webmd.com/a-to-z-guides/hemophilia-topic-overview

72. Bayer Hemophilia Village
    http://www.hemophilia.jp/

73. Hemophilia - New World Encyclopedia
    hemophilia, or haemophilia, is the name of any of several hereditary genetic illnesses that impair the body's ability to control bleeding. Genetic deficiencies (or, very rarely, an  
    http://www.newworldencyclopedia.org/entry/Hemophilia
    
    Extractions: Jump to: navigation search Previous (Hemoglobin) Next (Henan) Hemophilia, or haemophilia, is the name of any of several hereditary genetic illnesses that impair the body's ability to control bleeding. Genetic deficiencies (or, very rarely, an autoimmune disorder) cause lowered activity of the plasma clotting factor, which thus compromises the clotting of blood -clotting so that when a blood vessel is injured, a scab will not form and the vessel will continue to bleed excessively for a long time. The bleeding can be external, if the skin is broken by a scrape, cut, or abrasion, or it can be internal, with blood leaking into muscles , joints, or hollow organs. Bleeding, therefore, may present itself either visibly as skin bruises or subtly as melena (blood in the feces), hematuria (blood in the urine), or bleeding in the brain , which can be fatal. In subtler cases, bleeding may be present only following major procedures in newborn babies and then may be injury related in the toddler period and onwards. Though there is no cure for hemophilia, many

74. Factor Foundation Of America
    Locating financial support for those dealing with hemophilia and related bleeding disorders. Membership.  
    http://www.factorfoundation.org/
    
    Extractions: Welcome to Factor Foundation of America, Dave Madeiros - Founder Our Mission: To create a perpetual source of grant funds to support organizations providing comprehensive multi-disciplinary medical treatment, research, education and socio-economic support to persons with inherited bleeding disorders. Archives

75. Hemophilia | Define Hemophilia At Dictionary.com
    –noun any of several Xlinked genetic disorders, symptomatic chiefly in males, in which excessive bleeding occurs owing to the absence or abnormality of a clotting factor in  
    http://dictionary.reference.com/browse/ hemophilia

76. Victory For Women With Blood Disorders
    The National hemophilia Foundation s (NHF) public awareness campaign to reach women with undiagnosed bleeding disorders.  
    http://www.projectredflag.org
    
    Extractions: Search: NHF Membership Go to my NHF Subscribe to eNotes Donate to NHF ... Contact Us Victory For Women with Blood Disorders We are proud to announce our new women’s health and bleeding disorder initiative Victory for Women with Blood Disorders , an endeavor that builds upon and expands the former Project Red Flag. With the assistance and expertise of volunteers on our education/outreach committee, public awareness committee, and the National Hemophilia Foundation’s (NHF) Medical and Scientific Advisory Council (MASAC), the Victory for Women with Blood Disorders program will incorporate education, advocacy, and support for women diagnosed with a blood disorder as well as raising awareness among women who have not yet been diagnosed Victory for Women with Blood Disorders Initiative 2010 – 2011 Awareness and Education Support Advocacy V4W Current Projects

77. Hemophilia A -- GeneReviews -- NCBI Bookshelf
    GeneReviews designates a molecular genetic test as clinically available only if the test is listed in the GeneTests Laboratory Directory by either a US CLIAlicensed laboratory  
    http://www.ncbi.nlm.nih.gov/bookshelf/br.fcgi?book=gene&part=hemo-a

78. VersaPharm, Inc - H O M E
    Pharmaceutical developer and marketer of specialty prescription products to the United States, working to develop and deliver pharmaceuticals primarily for treatment areas of Tuberculosis, hemophilia, and other blood disorders.  
    http://www.versapharm.com/
    
    Extractions: Incorporating Innovation and Versatility in Development and Marketing of Generic Pharmaceuticals VersaPharm is an industry leader in the development and marketing of multi-source prescription pharmaceuticals. All of VersaPharm’s products are manufactured to the highest standards of quality and supported by exceptional customer care professionals. VersaPharm has a fully dedicated Research and Development facility in the United States that insures a robust and a continuous pipeline of new products. VersaPharm markets our products to drug wholesalers, retail drug chains, pharmaceutical distributors, group purchasing organizations, hospitals, clinics and government agencies.

79. BDI Pharma, Inc. - More Than A Product And A Price.
    Wholesale distributor of plasma derived pharmaceuticals, including IVIG, hemophilia fators VII, VIII and IX, albumins and hyper-immunes and injectables.  
    http://www.blooddiagnostics.com

80. Factor V Deficiency: MedlinePlus Medical Encyclopedia
    Provides brief information about this inherited bleeding disorder, which is similar to hemophilia. Includes causes, symptoms, and prognosis.  
    http://www.nlm.nih.gov/medlineplus/ency/article/000550.htm
    
    Extractions: National Institutes of Health Home About MedlinePlus ... Contact Us Search MedlinePlus Factor V deficiency is an inherited condition that affects the ability of the blood to clot. Normal blood coagulation is a complex process involving as many as 20 different proteins in blood plasma, which are known as blood coagulation factors. A series of complex chemical reactions using these factors takes place very rapidly to form a protein called fibrin, which stops bleeding. Factor V deficiency is caused by a lack of the plasma protein Factor V. When certain coagulation factors are low or missing, the chain reaction does not take place normally. Factor V deficiency is rare, and can be caused by inheriting a defective Factor V gene or by acquiring an antibody that interferes with normal Factor V function. You can acquire an inhibitor of Factor V: Sometimes the cause is unknown.

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