41. Cystic Fibrosis -Lungs For Life Foundation -Organ Donation Transplant Provides financial assistance to cystic fibrosis and lung transplant patients. http://lungsforlife.org/

Welcome About LFL Cystic Fibrosis Raise Awareness ... View Your Cart JOIN THE DISCUSSION Ask questions, exchange ideas, share your stories. View LFL Message Boards Celebrating 9 years of: assistance, education and support! Welcome The Lungs for Life blog, Breathe , has moved. Check out our new location at http://lungsforlifeblog.blogspot.com Support the mission of the Lungs for Life Foundation Lungs for Life (LFL), an all-volunteer 501c3 organization dedicated to assisting individuals and families affected by cystic fibrosis Our primary goal is to provide necessary assistance * to meet the daily living and medical needs of those with cystic fibrosis. We improve the quality of life for cystic fibrosis individuals as they await a cure and we help to ease the burdens they face as they battle their disease. The LFL website is a resource for both the cystic fibrosis and transplant communities. We provide important links to cystic fibrosis information sites, transplant information sites, outside organizations, individuals and a host of other resources that share or further our mission. *At this time, our assistance program extends only to U.S. citizens of Monroe County, New York State. We hope to re-open nationwide assistance at some point in the future.

42. Pegson In The Present A personal look at the disease cystic fibrosis from a bloggers perspective. http://pegsoninthepresent.com

43. Cysticfibrosis.net - Treatments, Diets, Cystic Fibrosis Many of you are aware of the way cystic fibrosis can affect the human body and all of the health complications that it can create. What many people do not realize though, is http://www.cysticfibrosis.net/

// 26f2c0bd88ed1fe0be78a57439b97490 vz.graphicsDir = 'http://www.cysticfibrosis.net/wp-content/plugins/Viva-ThumbZoom/lib/v-zoom/graphics/'; vz.outlineType = 'rounded-white'; Cystic Fibrosis Cystic Fibrosis Home Featured Listings Subscribe to Feed What Living With Cystic Fibrosis Means Posted on November 13, 2009, 10:56 pm, by admin, under Gallery Living Living With Cystic Fibrosis Means Cystic fibrosis does not only affect the body, it affects the life of the sufferer and everybody around them. Sometimes, it is important to keep that in mind. Tags: cystic fibrosis fibrosis fibrosis cystic gene therapy ... university Comments Off Trying to Manage Cystic Fibrosis Posted on November 13, 2009, 10:51 pm, by admin, under Gallery Latest News Manage Cystic Fibrosis Unfortunately, cystic fibrosis is a genetic disease. It affects many different parts of the body because of a genetic mutation in a gene that creates glands. As with other genetic diseases, there is no cure at this point for cystic fibrosis. There is research being performed for gene therapy in infants that can correct that certain gene, but that is still in its early stages. It could be years before gene therapy is used to cure this disease, if it can be used at all. In the meantime, cystic fibrosis can be managed using different techniques that target specific problems or symptoms. Here are some of the symptoms that are currently used by physicians to treat cystic fibrosis. It is always tragic when somebody is diagnosed with Cystic fibrosis, but times have changed. In the past, if somebody was diagnosed with this ailment, it was a death sentence. These days, the degeneration of the organs can be slowed down and infections can be prevented. The quality of life has greatly improved because of advances in the medical field. Find out what symptoms come along with CF, and if you are suffering from a few or all of them, consult a physician as soon as possible.

44. Cystic Fibrosis | Baby | March Of Dimes Cystic fibrosis (CF) is an inherited disease that affects the lungs and digestive system. Most affected individuals survive into their late 30s. There is currently no cure. http://www.marchofdimes.com/pnhec/4439_1213.asp

45. Cystic Fibrosis Resource Center - HealingWell.com Directory about Cystic Fibrosis, including books, medical news, articles and information, links, message boards. http://www.healingwell.com/cysticfibrosis/

Home Videos Resources Join HealingWell ... ABOUT US Cystic Fibrosis Join HealingWell.com Get on the road to "healing well" - join HealingWell.com , a social network and support community. You'll find information, resources, and support, plus full access to the forums and chat rooms. And it's all FREE! Join over HealingWell members Select a Condition: AIDS - HIV Allergies Anxiety/Panic Disorders Arthritis Breast Cancer Chronic Fatigue Syndrome Cystic Fibrosis Depression Diabetes Epilepsy Fibromyalgia GERD (Acid Reflux) Headaches Heartburn Hepatitis Irritable Bowel Syndrome Lupus Lyme Disease Migraines Multiple Sclerosis Prostate Cancer Make-A-Wish Foundation of Greater LA to grant its 7000th wish, 14 yr old Claire with Cystic Fibrosis wishla Boys and CF pigsarereallycute difficulty with determining illnesses with my cf child CF foin.25010984 I have CF and I'm moving from CA to FL and am having a hard time getting medical coverage please hel cf la Could I have CF Prenatal diagnosis for CF - no sugar-coating please my lil flipper 2 small boys with CF JKoroskenyi Suspecting CF in my 12 year old son CF and Lupus timboy CF Related Diabetes?

46. NIH Office Of Rare Diseases Research (ORDR) - Error A US Department of Health and Human Service project providing information on genetic and rare diseases. A comprehensive body of resources on Cystic fibrosis http://rarediseases.info.nih.gov/GARD/Disease.aspx?PageID=4&diseaseID=6233

47. Cystic Fibrosis Medicine Provides free information to professionals involved with the treatment of cystic fibrosis. An open access section is also available to both patients and family http://www.cysticfibrosismedicine.com

48. Cystic Fibrosis: EMedicine Pediatrics: General Medicine Overview Cystic fibrosis (CF) is the most common lethal inherited disease in white persons.1 Cystic fibrosis is an autosomal recessive disorder, and most carriers of the gene http://emedicine.medscape.com/article/1001602-overview

49. CysticFibrosis.com - Resource For Cystic Fibrosis Information, Support And News Internet community for cystic fibrosis patients, families and loved ones. Information on clinical trials, gene therapy, testing, associations, research and events. http://cysticfibrosis.com/

ColdFusion.Ajax.importTag('CFAJAXPROXY'); Always consult your medical specialist or CF Center when determining which course of cystic fibrosis treatment is best for you or your loved ones. Clinical Trials Galleries Remember network ... Join Videos Loading the player ... Now Playing: Dana S. Hardin, MD Nationwide Children's Hospital Columbus, OH Parenting KNOWCF Videos Vew All CFTube Videos Vew All MediWidget Lantus A long-acting insulin. Lasts 24 hours. Basal insulin. view more information about this medication NewsLetter - September 24, 2010 Taking weekends trips etc. New Order-CF Bracelets ... Payment Assistance Links Subscribe to CF's e-mail update. Latest Forum postings PFT's and transplants? coltsfan715, November 14 11:22 AM Right After surgery coltsfan715, November 14 11:18 AM what are the outcomes of a transplant? coltsfan715, November 14 11:13 AM cf "inventions" tessa55454, November 14 11:07 AM thinking about... entropy, November 14 10:39 AM Laughter mamerth, November 14 9:00 AM LATEST BLOGS HOME! Jane, November 13 6:12 PM Great Strides Walk adamsants, November 12 5:09 PM

50. Canadian Cystic Fibrosis Foundation The Canadian Cystic Fibrosis Foundation. Canadian pioneers in the fight against CF. Doug and Donna Summerhayes are the first to admit their family “lives, eats and http://www.cysticfibrosis.ca/page.asp?id=1

51. Cystic Fibrosis Message Board Forum for support, and to discuss information, concerns, and treatment options. http://www.healthboards.com/cystic-fibrosis/

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52. Cystic Fibrosis - HealingWell.com Forum Active message board and chat for caregivers and individuals with Cystic Fibrosis. Share support, give advice, or offer coping skills. Moderated by volunteers. http://www.healingwell.com/community/default.aspx?f=18

53. Cystic Fibrosis: Symptoms - MayoClinic.com Cystic fibrosis — Comprehensive overview covers causes, symptoms, treatment of this inherited condition. http://www.mayoclinic.com/health/cystic-fibrosis/DS00287/DSECTION=symptoms

54. BioSpace Offers Pharmaceutical, Biotechnology And Healthcare Industry News - Dis Regularly updated news on developments in cystic fibrosis research and treatment. http://www.biospace.com/news_by_disease_results.aspx?TheRxId=63

55. Cystic Fibrosis - Information About Cystic Fibrosis Basic and indepth information about cystic fibrosis. What is cystic fibrosis? What causes cystic fibrosis? What are the symptoms? How is cyatic fibrosis diagnosed and treated? http://cysticfibrosis.about.com/

56. A Wish For Wendy - A Softball Tournament Benefitting Cystic Fibrosis Research Softball tournament benefiting Cystic Fibrosis research in honor of Wendy Carol Lipman who died 15 days after birth from cystic fibrosis. http://wishforwendy.org

57. Cystic Fibrosis: EMedicine Otolaryngology And Facial Plastic Surgery Overview Cystic fibrosis (CF) is a chronic multisystem disorder characterized by recurrent endobronchial infections, progressive obstructive pulmonary disease, and pancreatic http://emedicine.medscape.com/article/862538-overview

58. The Cystic Fibrosis Center At Rush Children S Hospital Offers a state-of-the-art multidisciplinary team approach to the care and treatment of infants, children, adolescents and adults with cystic fibrosis. http://www.rush.edu/patients/children/services/specialties/cysticfibrosis/

59. CysticFibrosis.com | JazzysMom's Blog Community blogs for cystic fibrosis. Express yourself, talk to the community, share your concerns and receive support. http://blogs.cysticfibrosis.com/

60. Cystic Fibrosis Center Information on this children s specialty clinic in Sioux Falls. http://www.sanfordhealth.org/CentersofExcellence/Childrens/ServicesSpecialties/C

Sanford Children's Sanford Health Find a doctor Specialties ... Specialty Pediatrics Cystic Fibrosis Center Sanford Home In This Section Anesthesia Athletic Health Bleeding Disorders Clinic Bone Clinic ... Weight Management Clinic Cystic Fibrosis Center Department Physicians James W. Wallace, MD (Program Director) David A. Thomas, MD Susan M. Rohr, DO Nancy K. Foss, RN, CNP Stacy Peters, Pharm.D. The South Dakota Cystic Fibrosis Center located at takes a multidisciplinary approach to the care of children and adults with Cystic Fibrosis. The Center consists of numerous specialists who work together to provide care for each patient. The interdisciplinary team of pediatric pulmonologist James Wallace, MD , (Program Director), adult pumonologists David Thomas, MD and Susan Rohr, DO , and clinical pharmacist Stacy Peters, PharmD, registered nurses, respiratory therapists, social workers and dietitians forms the core of our center and meets regularly to assess the clinical, educational and psychosocial needs of each family and to plan and evaluate care provided. was one of 45 centers across the nation awarded a Cystic Fibrosis Research Facilitation Award. This grant has enabled the clinic to increase participation in Cystic Fibrosis clinical trials, giving our patients the opportunity to participate locally in various Cystic Fibrosis research studies. The clinic is currently participating in three clinical trials. These studies help develop new medications and treatments needed for continued progress towards a cure for Cystic Fibrosis.

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