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         Hemophilia:     more books (101)
  1. Textbook of Hemophilia
  2. Blood Saga: Hemophilia, AIDS, and the Survival of a Community, Updated Edition With a New Preface by Susan Resnik, 1999-08-25
  3. Survivor: One Man's Battle with HIV, Hemophilia, and Hepatitis C by Vaughn Ripley, 2010-09-30
  4. Diagnostic Imaging in Hemophilia: Musculoskeletal and Other Hemorrhagic Complications by H. Pettersson, M.S. Gilbert, 1985-07-11
  5. Handbook of hemophilia
  6. Hemophilia (Genes and Disease) by Michelle Raabe, 2008-10-30
  7. Hemophilia (Diseases and People) by Edward Willett, 2001-07
  8. Acquired Hemophilia
  9. Genetic Disorders Sourcebook: Basic Information About Heritable Diseases and Disorders Such As Down Synd Rome, Pku, Hemophilia, Von Willebrand Disease, ... Tay-Sachs d (Health Reference Series)
  10. Genetic Disorders Sourcebook: Basic Consumer Health Information About Hereditary Diseases and Disorders, Including Cystic Fibrosis, Down Syndrome, Hemophilia, ... Disease (Health Reference Series)
  11. Hemophilia by Jeri Freedman, 2006-07-01
  12. Hemophilia in the Child and Adult by Margaret W. Hilgartner, 1989-06
  13. The Child With a Chronic Medical Problem-Cardiac Disorders, Diabetes, Hemophilia (National Children's Bureau Bibliographies, 3) by Rosemary Dinnage, 1986-12
  14. Diseases and Disorders - Hemophilia by Beverly Britton, 2003-02-07

1. Welcome To The National Hemophilia Foundation
The National hemophilia Foundation is dedicated to finding better treatments and cures for bleeding and clotting disorders and to preventing the complications of these
http://www.hemophilia.org/
Search: NHF Membership Go to my NHF Subscribe to eNotes Donate to NHF ... Hechos y Respuestas Rápidas Welcome to the National Hemophilia Foundation The National Hemophilia Foundation is dedicated to finding better treatments and cures for bleeding and clotting disorders and to preventing the complications of these disorders through education, advocacy and research. The National Hemophilia Foundation helps consumers:

What's New:
Join NYLI Now

Check out this state-of-the-art multimedia showcase. Learn about products and services. Sign up for your free copy of HemAware magazine.
The development of the Virtual Exhibit Hall was provided by the generous support of CSL Behring.
There's a wide range of resources for Researchers, Medical and Healthcare Professionals, including: Our research, education and advocacy initiatives are made possible with your involvement and generous support. Here's how you can help:

2. Hemophilia Village. Stay Informed. Live Inspired.
Information on the signs, symptoms, causes and treatments of hemophilia A and B.
http://www.hemophiliavillage.com/
Stay informed. Live inspired.
Brought to you by Pfizer Hemophilia. Important Safety Information Prescribing Information
Featured Story
Meet Graham: ... Our promise to you
Need help accessing Pfizer medicines?
Pfizer's RSVP program may be able to help.
Call or visit www.HemophiliaVillage.com/RSVP You are encouraged to report negative side effects of prescription drugs to the FDA. Visit www.fda.gov/medwatch , or call 1-800-FDA-1088. Home Site Map About Hemophilia Village Update Your Profile ... About Pfizer Hemophilia The health information contained herein is provided for educational purposes only and is not intended to replace discussions with a health care provider. All decisions about patient care must be made with a health care provider, considering the unique characteristics of the patient. The product information provided in this site is intended for residents of the United States. The products discussed herein may have different product labeling in different countries. Manufactured by Wyeth Pharmaceuticals Inc.

3. Haemophilia - Wikipedia, The Free Encyclopedia
Haemophilia (also spelled hemophilia in North America, from the Greek haima αἷμα 'blood' and philia φιλος 'love') is a group of hereditary genetic disorders that
http://en.wikipedia.org/wiki/Haemophilia
Haemophilia
From Wikipedia, the free encyclopedia Jump to: navigation search Haemophilia Classification and external resources
Deficiency in coagulation factor VIII is the most common cause of haemophilia. ICD D D ICD ... MeSH
Haemophilia (also spelled hemophilia in North America , from the Greek haima αἷμα 'blood' and philia φιλος 'love' ) is a group of hereditary genetic disorders that impair the body's ability to control blood clotting or coagulation , which is used to stop bleeding when a blood vessel is broken. Haemophilia A (clotting factor VIII deficiency) is the most common form of the disorder, occurring at about 1 in 5,000–10,000 male births. Haemophilia B factor IX deficiency) occurs at about 1 in about 20,000–34,000 male births. Like most recessive sex-linked X chromosome disorders, haemophilia is more likely to occur in males than females. This is because females have two X chromosomes while males have only one, so the defective gene is guaranteed to manifest in any male who carries it. Because females have two X chromosomes and haemophilia is rare, the chance of a female having two defective copies of the gene is very low, so females are almost exclusively asymptomatic carriers of the disorder. Female carriers can inherit the defective gene from either their mother or father, or it may be a new mutation. Only under rare circumstances do females actually have haemophilia.

4. Hemophilia
An inherited blood disorder, hemophilia occurs when the blood does not clot normally. This eMedTV article provides an overview of hemophilia, including information about how it is
http://blood.emedtv.com/hemophilia/hemophilia.html
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  • Home Health Topics Articles Video Blood Medications Advertisement View All Related eMedTV Health Channels Arteriosclerosis Beta Thalassemia Deep Vein Thrombosis Hemophilia ... Site Map HealthSavvy Sign In
    Hemophilia
    Hemophilia is a disorder where the blood does not clot normally. While the blood disorder usually occurs only in males, there are rare exceptions in which a female will have it. Symptoms of hemophilia include bleeding (which may occur internally in joints and muscles) and bruising. Treatment most often involves replacement therapy, in which the clotting factor missing in people with the disease is replaced.
    Hemophilia Disease
    What Is Hemophilia?
    Hemophilia is a rare, inherited bleeding disorder in which the blood does not clot normally. People who have it may bleed for a longer period of time following an injury or accident. People with the disorder may also bleed internally, especially in the joints (such as the knees, ankles, and elbows). Approximately 18,000 people in the United States have hemophilia, and about 400 babies are born each year with this disorder in the U.S. Although it usually occurs only in males, there are very rare exceptions in which a female will have the blood disorder.

5. Bleeding Disorders Logic
hemophilia Association in America.
http://www.hemophilia.com
English Espaol Text Size: A A A A ... Plan Sponsor Search: Home Specialty Pharmacy Specialty Care Programs Support Services ...
RSV Logic

Bleeding Disorders Logic
Bleeding Disorders Logic is a medication and specialty care management program for CuraScript patients on therapy for hemophilia and von Willebrand disease. Bleeding Disorders Logic provides additional clinical support and empowers patients with knowledge about their bleeding disorder and how to effectively manage their disease and medication. Bleeding Disorders Logic services include, but are not limited to:
  • Toll-free access to licensed pharmacists for urgent needs 24 hours a day, seven days a week Toll-free access to clinical nurses specially trained in hemophilia and other bleeding disorders Calls from nurses to discuss your progress and anything that may affect your health, detect any new symptoms or medication side effects and help you take your medicine correctly to receive the greatest benefit from it Mailed education materials and access to CuraScript websites that help you manage your condition Coordination with Patient Assistance Programs that offer financial help Access to on-staff social workers who can provide emotional support and help identify community assistance programs in your area
To learn more about Hemophilia or Von Willebrand disease click here: Infusion Logs
The information that you record on your infusion log enables your physician to monitor your treatment and make adjustments as needed, and can help you determine whether certain activities increase your risk for bleeding.

6. Commercial Director, Global Hemophilia Marketing (Factor IX) : Waltham MA : Natu
A hemophilia is an inherited disorder in which there is inability to form an effective clot and hence causes prolonged bleeding in a patient.
http://www.nature.com/naturejobs/science/jobs/168113-Commercial-Director-Global-
  • Jump to main content Jump to navigation nature.com homepage ... Job search Job description
    Commercial Director, Global Hemophilia Marketing (Factor IX) : Waltham MA
    Employer:
    Biogen Idec
    Website:
    http://posttrak.arbita.net/cg...
    Location:
    Waltham MA
    Type:
    Director/ CEO/ Chair
    Posted:
    October 29, 2010
    Expires:
    December 28, 2010
    Jobs by tag(s):
    Requisition number:
    Science jobs from Biogen Idec: job description
    The Commercial Director of Global Hemophilia Marketing will be responsible for the development of a global marketing strategy for the recombinant long-acting Factor IX (rFIXFc) or Factor VIII (rFVIIIFc) programs in clinical development with special focus on the US market. The Commercial Director will be the architect for the long-range global strategic plan for the brand ensuring that we maximize the lifecycle of the brand. This individual will be the brand champion throughout the company as well as being responsible for hiring, coaching and developing the brand team. As a senior leader within the organization, this individual will lead the brand in numerous cross-functional projects and programs working with several functional departments within the Biogen Idec organization. They must also be able to work collaboratively with other the Commercial Directors within hemophilia team to grow Biogen Idec into a market leader in hemophilia. This individual will utilize their industry experience to make sound business decisions and provide the needed recommendations to key stakeholders throughout the organization to achieve the overall brand goals.

7. What Is Hemophilia, Hemophilia A, And Hemophilia B?
hemophilia is a rare bleeding disorder in which your blood doesn't clot normally.
http://www.nhlbi.nih.gov/health/dci/Diseases/hemophilia/hemophilia_what.html

DCI Home
Blood Diseases Hemophilia : What Is ...
What Is ...
Other Names Causes Diagnosis ... Links
What Is Hemophilia?
Hemophilia (heem-o-FILL-ee-ah) is a rare bleeding disorder in which your blood doesn't clot normally. If you have hemophilia, you may bleed for a longer time than others after an injury. You also may bleed internally, especially in your knees, ankles, and elbows. This bleeding can damage your organs or tissues and may be life threatening.
Overview
Hemophilia usually is inherited. This means that the disorder is passed from parents to children through the genes. People born with hemophilia have little or no clotting factor. Clotting factor is a protein need for normal blood clotting. There are several types of clotting factors. These proteins work with platelets (PLATE-lets) to help the blood clot. When blood vessels are injured, clotting factors help platelets stick together to plug cuts and breaks at the site of the injury and stop bleeding. Without clotting factors, normal blood clotting can't take place. Some people who have hemophilia need injections of a clotting factor or factors to stop bleeding. There are two main types of hemophilia. If you have hemophilia A, you're missing or have low levels of clotting factor VIII (8). About 9 out of 10 people who have hemophilia have type A. If you have hemophilia B, you're missing or have low levels of clotting factor IX (9).

8. Disease Information From NORD, National Organization For Rare Disorders, Inc.
National Organization for Rare Disorders is dedicated to helping people with rare, orphan diseases. Rarediseases.org contains information on the prevention, treatment and cure of
http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Hemophilia

9. FAMOHIO, Inc. - Home
A registered charity that promotes the sharing of knowledge, experiences and concerns among those individuals with hemophilia and related bleeding disorders.
http://www.famohio.org
FAMOHIO, Inc.
Family Annual Meeting of Hemophiliacs in Ohio
FAMOHIO, Inc.
50 West Broad Street
Suite 1801
Columbus OH
alt:
heidi
@bakernon profits .com ... Contact Us
Home
Our History 
Six men founded FAMOHIO, Inc. in the spring of 1992. That year, “FAMOHIO” was the acronym for “First Annual Meeting of Hemophiliacs in Ohio” but it has since meant “Family Annual Meeting of Hemophiliacs in Ohio.”
FAMOHIO, Inc. was grown out of the frustration of these adult men and their colleagues who had been infected by HIV in part because of the failure of government, product manufacturers, hemophilia organizations and others to adequately manage the quality of factor and communicate in a timely manner the risks of treatment. These men believed that an annual meeting of hemophiliacs and their families would provide an opportunity to share information, educate themselves, and work together for their common good. It was hoped that such a symposium would minimize the likelihood of a recurrence of such a calamity.
Of the six men who organized FAMOHIO, Inc., Tommy Burr, Tom Drake, Ira Gaffin and Darrell Hairston have died. All four were active in and strong advocates of the hemophiliac community, and left behind loved ones as well as many friends who have ensured the continuation of FAMOHIO, Inc.

10. Hemophilia: Definition From Answers.com
n. Any of several hereditary bloodcoagulation disorders in which the blood fails to clot normally because of a deficiency or abnormality of one of the clotting factors
http://www.answers.com/topic/hemophilia

11. Hemophilia Foundation Of Nevada
The hemophilia Foundation of Nevada (HFNV) is a nonprofit consumer advocacy organization for people with bleeding disorders in the state of Nevada.
http://hfnv.org/

12. Hemophilia Pediatric Oncall
An introduction by Pediatric Oncall
http://www.pediatriconcall.com/fordoctor/diseasesandcondition/hemophilia.asp
ISSN 0973 - 0958 Search Doctor Corner Parents Corner Child Corner User Name Password Remember Me New User Register Forgot Password ? Change Password Get Diagnosis ... Medical Quiz New Sections Video Podcast Audio Cast Mobile(WAP) Pedi Poll Should miilk derived from cows given growth hormone injections be used in children_? Yes No Translate This Page Select To Translate English To Spanish English To French English To German English To Italian English To Dutch English To Portuguese English To Arabic English To Greek English To Japanese English To Korean English To Russian English To Chinese(Sim) English To Chinese(Tra) HEMOPHILIA Dr Ira Shah
M.D, DCH(Gold Medalist), FCPS, DNB
Q: What is hemophilia?
A: Hemophilia is an inherited disorder in which there is inability to form an effective clot and hence causes prolonged bleeding in a patient. It is seen exclusively in males. A person with hemophilia does not bleed faster, only longer.
Q: How common is hemophilia?
A: Hemophilia affects approximately 1 in 5,000 live male births.
Q: How is hemophilia inherited ?

13. Hemophilia: What Is It?
Multimedia guide where you can learn about this disease, what causes it, what it is like to have it, and how it is inherited, diagnosed, and treated.
http://www.ygyh.org/hemo/whatisit.htm

Concept 1
: Children resemble their parents. Learn how Mendel worked out inheritance in pea plants.
Concept 10
: Chromosomes carry genes. Find out how genes are arranged on chromosomes.

14. Hemophilia
hemophilia is a rare bleeding disorder that prevents the blood from clotting properly.
http://kidshealth.org/parent/medical/genetic/hemophilia.html

15. Blood Disorders: Hemophilia Disease
hemophilia Disease is a kind of genetic blood disorders due to malfunction of blood clotting factors or genetic mutation. As clotting doesn’t take place properly, it often
http://www.buzzle.com/articles/blood-disorders-hemophilia-disease.html
Home World News Latest Articles Escape Hatch ... Endless Buzz
Blood Disorders: Hemophilia Disease
Hemophilia Disease is a kind of genetic blood disorders due to malfunction of blood clotting factors or genetic mutation. As the clotting doesnt take place properly, it often results into anemia and death. Also known as Royal Disease, this is linked with x chromosomes. Let us have a look Hemophilia is a recessive genetic disorder linked to the X-Chromosome that is a malfunction of the eighth and ninth blood clotting factors. The blood does not clot properly and therefore any injuries that result in a cut can lead to death. Until very recently there has not been a cure and many people with this disease died before they could have children. It has been called the royal disease because it suddenly showed up as a genetic mutation in Queen Victoria (1819-1901) of Britain, who was a carrier and passed it on to her eighth son Leopold and thus on to her descendants and many other royal families of Europe. Her son was protected for many years, but died because of a fall at the age of thirty-one years old.
What is Hemophilia?

16. Hemophilia, Hemophilia
hemophilia is an inherited bleeding disorder caused by the absence or decreased levels of certain blood clotting factors.
http://www.tylermedicalclinic.com/hemophilia.htm
The Tyler Medical Clinic Assisted Conception - Affordable Infertility Treatments - List of Diseases - Hemophilia A and Hemophilia B Hemophilia is an inherited bleeding disorder caused by the absence or decreased levels of certain blood clotting factors. In response to an injury such as a cut, the body releases platelets to form a clot at the injury site to prevent further bleeding. Various factors are produced by the platelets and these interact to form a clot. Absence or decreased levels of certain clotting factors causes increased bleeding time and results in Hemophilia. There are two types of Hemophilia and these are classified according to the deficient clotting factor. The more common form, Hemophilia A, is caused by a Factor VIII deficiency, and the less common form, Hemophilia B, is caused by Factor IX deficiency. Approximately 2/3 of all cases of Hemophilia are inherited, the rest are due to a sporadic genetic mutation. A couple with a familial history of hemophilia should consult with a genetic counselor. They should also be aware and should consider a new genetic test called Preimplantation Genetic Diagnosis (PGD). PGD tests for genetic defects and determines the gender of an embryo prior to implantation. Through this mechanism, the chance of having an affected child can be significantly reduced. A genetic counselor can advise a couple on whether PGD will be of benefit to them. PGD can also test for other genetic disorders and is continually being improved to encompass other hereditary diseases.

17. Ontario - Canadian Hemophilia Society
Committed to improve the quality of life of people affected by hemophilia and related blood conditions. Includes information, programs, regions, how to support the organization or volunteer.
http://www.hemophilia.ca/en/provincial-chapters/ontario/
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  • Home Provincial Chapters Ontario About the CHS
    Our Partners
    Ontario
    Welcome to Hemophilia Ontario Vision A world free from the pain and suffering of inherited bleeding disorders. Mission Our mission is to strive to improve the health and quality of life for all people with inherited bleeding disorders, and to find a cure. Values At Hemophilia Ontario, an integral part of our current organizational identity and experience is based in the loss suffered by the hemophilia community, those with inherited bleeding disorders and other who were infected with HIV and/or Hepatitis C and their families, friends and communities; through blood or blood products they depended on for lifesaving treatment and therapy over the past two decades. With this principle at our core, Hemophilia Ontario is guided by the following values in the work we undertake: Accessibility Products or information and portability of services used in the treatment of inherited bleeding disorders; the services ti improve quality of life; and the treatment for those infected with HIV, Hepatitis C and other blood pathogens are always available where and when required.

18. Hemophilia Disease
hemophilia Disease Browse eMedTV's wide range of articles related to hemophilia disease including topics such as living with hemophilia, hemophilia treatment, and causes of
http://blood.emedtv.com/blood/hemophilia-disease.html
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19. Hemophilia - Definition Of Hemophilia By The Free Online Dictionary, Thesaurus A
he mo phil i a (h mf l-, -f l y) n. Any of several hereditary blood-coagulation disorders in which the blood fails to clot normally because of a deficiency or abnormality of one of
http://www.thefreedictionary.com/hemophilia

20. World Federation Of Hemophilia
A global network of healthcare providers, national hemophilia associations, people with hemophilia and their families. Organization history, information about programs, publications, resources, and events, and treatment and research news, including product recalls.
http://www.wfh.org/

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