41. Nutrition For People With Huntington's Disease Nutritional information, and resource links on aspects of nutritional care for people with Huntington s disease. http://www.lib.uchicago.edu/~rd13/hd/nutritn.html

Nutrition for People with Huntington's Disease Introduction Resources By Renette Davis with assistance from people on the Mailing List for Huntington's Disease Introduction Dysphagia is the most common cause of death in HD, either directly from suffocation or aspiration, or indirectly from starvation. (From A Physician's Guide to the Management of Huntington's Disease by Neal G. Ranen, M.D., Carol E. Peyser, M.D., and Susan E. Folstein, M.D., published 1993 by the Huntington's Disease Society of America, p. 24.) Dysphagia means difficulty in swallowing. According to A Physician's Guide to the Management of Huntington's Disease dysphagia in Huntington's Disease appears to result from "difficulty with closing the mouth and chewing, mucus formation, choking on liquids, food gulping, difficulty with coordinating the sequence of swallowing, difficulty clearing the mouth of excess food after each swallow, and the unexpected inspiration of air." A new pamphlet entitled Huntington's Disease , published in 1996 by the Huntington's Disease Society of America, says on p. 17, "Nutrition is important in everyone's life, but takes on added significance in HD. People with HD require an unusually high number of calories to maintain their body weight. Maintaining, or even gaining, weight can help reduce involuntary movements and other symptoms, particularly in the later stages of HD." For this reason, we are trying to gather together cookbooks, recipes, ideas for finger foods, etc. for people with Huntington's Disease. We welcome suggestions from anyone who has experience with Huntington's Disease or with dysphagia. Send your suggestions to Renette Davis at:

42. Huntington’s Disease Overview, Incidence And Prevalence Of HD - Huntington's D Huntington's disease (HD) is a fatal hereditary disease that destroys neurons in areas of the brain involved in the emotions, intellect, and movement. Huntington's is http://www.neurologychannel.com/huntingtons/index.shtml

Home Health Topics Health Reports Learning Centers ... Huntington's Disease Huntington’s Disease Overview, Incidence and Prevalence of HD Share: Send to a Friend Print Huntington’s Disease Overview, Incidence and Prevalence of HD Overview of Huntington's Disease Huntington's disease (HD) is a fatal hereditary disease that destroys neurons in areas of the brain involved in movement, intellect, and emotions. The course of Huntington's is characterized by jerking uncontrollable movement of the limbs, trunk, and face (chorea); progressive loss of mental abilities; and the development of psychiatric problems. Questions to Ask Your Doctor about Huntington's Disease (Free Handout) Huntington's disease progresses without remission over 10 to 25 years and patients ultimately are unable to care for themselves. Huntington's disease usually appears in middle age (30-50 years), but can develop in younger and older people. Juvenile HD (also called Westphal variant or akinetic-rigid HD) develops before the age of 20, progresses rapidly, and produces muscle rigidity in which the patient moves little, if at all (akinesia). Autosomal Dominant Inheritance of Huntington's Disease In autosomal dominant inherited disease, a single abnormal allele is inherited from one parent. Alleles are the pairs of genes that determine individual characteristics.

43. NSW Huntington's Disease Association Offers support for families living in the Australian states of New South Wales and the Australian Capital Territory. Includes resources and information about NSW. http://www.ahdansw.asn.au/

Site Content Last Updated: 7 October 2010 Navigation: [Skip Menu] What's New? The Association: About Activities Helping Contacting ... Membership Form Information: HD Facts Carer's Pages Publications Links News and Events: Events News Legal: Privacy Welcome to the Huntington's Disease Association NSW The Australian Huntington's Disease Association (NSW) Inc was established as a small voluntary support group in 1975 to develop support and educational programs, to help people understand and cope, and to give Huntington's Disease families a single voice. From there is has grown to be a well established professional centre providing support to hundreds of families and professionals throughout New South Wale and the Australian Capital Territory. The Association is a member organisation of the national and international Huntington's Disease Associations. The purpose of this web site is to raise public awareness and provide information about Huntington's Disease and the situation of those that experience it. Our News Events and Carer's pages will keep you in touch with Association happenings, whilst our

44. Huntington' S Disease American SpeechLanguage-Hearing Association Making effective communication, a human right, accessible and achievable for all. http://www.asha.org/public/speech/disorders/HuntingtonsDisease.htm

American Speech-Language-Hearing Association Home Shop About Us Contact Us ... American Speech-Language-Hearing Association Making effective communication, a human right, accessible and achievable for all. Careers Certification Publications Events ... Member Center In This Section: Typical Speech and Language Development Learning More Than One Language Adult Speech and Language Child Speech and Language ... Find a Professional Featured Partner Become A Partner Home Information for the Public Speech, Language and Swallowing ... Disorders and Diseases Huntington's Disease en Español Based on a brochure developed by Lynn Rhoades, MS, CCC-SLP for the Huntington's Disease Society of America with financial support of the American Speech-Language-Hearing Association. What is Huntington's disease What are some signs or symptoms of Huntington's disease How is Huntington's disease diagnosed What treatments are available for people with Huntington's disease ... What other organizations have information about Huntington's disease What is Huntington's disease? Huntington's disease (HD) is a brain disorder in which there is progressive neurodegeneration leading to motor, cognitive, and psychiatric symptoms. Problems may develop in the following three areas: motor control (movement); cognition (thinking); and behavior. Speech and swallowing problems occur when the centers of motor or cognitive control are affected that cause muscle weakness or discoordination (

45. Huntington's Disease_homepage Gives disease information, services available in Queensland Australia and links. http://www.qahda.com/

Homepage Information - Huntington's Disease (HD) Support Services ... How You Can Help This website is a donation Welcome The purpose of this web site is raise public awareness and provide information about Huntington's Disease and the situaton of those that experience it. Huntingtons Queensland was established as a small voluntary support group in 1976 and is now a well established professional centre providing support to hundreds of families and professionals throughout Queensland. The Association is a member organisation of the national and international Huntington's Disease Associations. Fundraising through membership contributions, donations and other activities help us to expand our services and awareness of HD. To become a member of the Association or to make a donation, please click here for an application form or contact us at: Huntingtons Queensland 385 Ipswich Road ( PO Box 635) ANNERLEY, Q. 4103

46. Huntington's Disease Society Of America - Stages Of HD The Huntington’s Disease Society of America, Inc. (HDSA) is a National, voluntary health organization dedicated to improving the lives of people with Huntington's Disease and http://www.hdsa.org/living-with-huntingtons/family-care/stages-of-hd.html

47. Huntington's Disease For Families Information for all families living with this disease including people with HD, caregivers, those at risk and young people. http://huntingtondisease.tripod.com/

Huntington's Disease For Families Home Index Alphabetical Listing Site Specific Resources ... Nursing Care In Late Stage HD-Home Page Instructions: Please use the Index to access all of the topics contained on this website. To Jean Miller's Huntington's Disease Information For Families site Site This website is an attempt to incorporate all of my Huntington's Disease information into one location. As you might imagine, this will be a major job so I hope you will be patient with me until the new site is completed! WANT TO VOLUNTEER Unfortunately, I no longer have as much time as I once did to keep these webpages updated. Without help, I'll be deleting all of these sites because I don't want to have them "floating" around the internet with erroneous information or links on them wasting an HD families time looking for information. If anyone wants to volunteer to copy pages in HTML format for me or become a Website Guardian Angel, that would be fantastic! You don't need to know HTML to help. If you've got some time and want to help, email me!! No one will be turned down LOL and effort can be done on a as-you-have-the-time basis!

48. Genome.gov | Learning About Huntington's Disease Answers to frequently asked questions about Huntington's disease, published by the National Human Genome Research Institute. http://www.genome.gov/10001215

49. Heather S Huntington S Disease Page Features a weblog, care giving tips, ways to fight brain fog, myths, the author s story, families story, poetry, and ways to have a positive testing experience. http://heatherdugdale.angelfire.com/

50. Huntington's Disease Important It is possible that the main title of the report Huntington's Disease is not the name you expected. Please check the synonyms listing to find the alternate name(s http://www.webmd.com/brain/huntingtons-disease-11119

51. Huntington's Disease Program Services of the Huntington s disease program of the University of Connecticut Health Center. http://www10.uchc.edu/huntingtons

HOME PAGE CLINICAL SERVICES RESEARCH STUDIES RESIDENCY PROGRAM Choose Your Page Psychiatry Home Page Alcohol Research Center Chairman's Message Child and Adolescent Residency Clinical Services Education Faculty Fellowships Huntington's Disease Program Links Master Therapists Workshops Neuropsychology Service Research Subject Recruitment Research Studies Residency Program Training Chairman's Message Clinical Services Education Residency ... Grand Rounds THE UNIVERSITY OF CONNECTICUT HEALTH CENTER HUNTINGTON'S DISEASE PROGRAM OVERVIEW: Huntington's Disease (HD) is an inherited progressive brain disorder whose symptoms are caused by the loss of cells in a part of the brain called the basal ganglia. The damage to these cells affects a person's emotional control, cognitive ability (thinking, judgment, memory) and movement. Symptoms of HD vary greatly from person to person and usually appear between the ages of 30 and 50. However, the disease can strike young children (called Juvenile HD) and the elderly. HD can affect males and females of all races all over the world. Common features of HD can be broken down into three categories: Emotional/Behavioral Symptoms, Cognitive/Intellectual Symptoms and Motor Symptoms. Currently there is no cure for HD and eventually it is fatal. Symptoms of the disease however can be treated with medication and behavioral therapy. In 1993 the gene that causes HD was found. Since then, scientists are actively searching for treatments to slow down and/or cure HD. MISSION: The mission of the Huntington's Disease (HD) Program of the University of Connecticut Health Center is to provide care, treatment and education to patients with HD and their families. Persons eligible include Connecticut residents who have or are at risk for HD and their family members.

52. What Is Huntington's Disease? What Causes Huntington's Disease? Huntington's disease is an incurable, hereditary brain disorder. It is a devastating brain disorder for which there is no currently 'effective' treatment. Nerve cells become http://www.medicalnewstoday.com/articles/159552.php

@import "/css/pagelayout.css"; @import "/css/default.css"; @import "/css/defaultnews.css"; Health News Videos Article Opinions Forum ... Contact News Archive [ link Web Wikipedia Medical Dictionary [ link Follow us on: Personalization login register Huntingtons Disease News Useful Links What Is Huntington's Disease? What Causes Huntington's Disease? Retweet Editor's Choice Main Category: Huntingtons Disease Also Included In: Neurology / Neuroscience Caregivers / Homecare Palliative Care / Hospice Care Article Date: 02 Aug 2009 - 0:00 PDT email to a friend printer friendly opinions Current Article Ratings: Patient / Public: 4.43 (28 votes) Healthcare Prof: 3 (7 votes) Article Opinions: 0 posts Huntington's disease is an incurable, hereditary brain disorder. It is a devastating brain disorder for which there is no currently 'effective' treatment. Nerve cells become damaged, causing various parts of the brain to deteriorate. The disease affects movement, behavior and cognition - the affected individuals' abilities to walk, think, reason and talk are gradually eroded to such a point that they eventually become entirely reliant on other people for their care. Huntington's disease has a major emotional, mental, social and economic impact on the lives of patients, as well as their families. It used to be called Huntington's Chorea , because the involuntary movements made by patients with the disease can appear to be like jerky dancing - "chorea" comes from the Greek word choreia meaning "dancing". The English word "choreography" also comes from the Greek word

53. Home Coordinates and provides enrollment for drug trials across United States, Canada, Europe and Australia. http://www.huntington-study-group.org

54. What Is Huntington's Disease? Huntington's disease is a disorder passed down through families in which nerve cells in the brain waste away, or degenerate. http://www.medhelp.org/medical-information/show/586/huntingtons-disease

Huntington's disease Information, Symptoms, Treatments and Resources Overview Information Posts Related Topics ... Members Table of contents Definition Alternative Names Causes, incidence, and risk factors Symptoms ... Next Definition Huntington's disease is a disorder passed down through families in which nerve cells in the brain waste away, or degenerate. Alternative Names Huntington chorea Causes, incidence, and risk factors American doctor George Huntington first described the disorder in 1872. Huntington's disease is caused by a genetic defect on chromosome #4. The defect causes a part of DNA, called a CAG repeat, to occur many more times than it is supposed to. Normally, this section of DNA is repeated 10 to 35 times. But in persons with Huntington's disease, it is repeated 36 to 120 times. As the gene is passed on from one generation to the next, the number of repeats - called a CAG repeat expansion - tend to get larger. The larger the number of repeats, the greater your chance of developing symptoms at an earlier age. There are two forms of Huntington's disease. The most common is adult-onset Huntington's disease. Persons with this form usually develop symptoms in their mid 30s and 40s.

55. Huntingtons Disease & Families Links to support related to Huntington s disease. http://www.webring.com/hub?ring=huntingtons

56. Juvenile HD Information for families with a child with juvenile HD or one at-risk. Includes at-risk, genetic testing/testing of children, related JHD and HD symptoms and how to recognize/help, types of therapies, various medication and drug searches, surgeries, procedures used in testing, suicide, divorce, disabilities, assistive technology, support links, and benefits/insurance. http://endoflifecare.tripod.com/juvenilehuntingtonsdisease/

ap_loaded = false; Juvenile-HD INDEX Page Tools For Viewing 10 The Most Commonly Asked Questions Huntington's Disease~WeMove Info ... GUESTBOOK Created: March 2002 Updated : October 27, 2002 INSTRUCTIONS: Use the INDEX Page to get around this webite Information here is either directly about Juvenile Huntington's Disease, or other information which will hopefully be helpful to families who have a child with JHD or are concerned about their child having JHD. Section 4 , Symptoms, addresses all stages of Huntington's Disease. In many cases general information has been copied here in its entirity to save families time from going to many different links for the information. Most of these articles may be useful in helping you understand about Juvenile Huntington's Disease, the management of the symptoms, the procedures and medications ordered by your child's physician, etc. There is a lot of information helpful to children and young adults living with Huntingotn's Disease in their lives that was too much to include on this website since they deal with a lot of conditions, from a kids perspective.

57. Huntington's Disease What is Huntington's Disease? Huntington's Disease (HD) is a brain disorder that affects a person's ability to think, talk, and move. The disease destroys cells in the basal ganglia http://learn.genetics.utah.edu/content/disorders/whataregd/hunt/

About Us Feedback HOME WHAT ARE GENETIC DISORDERS? HUNTINGTON'S DISEASE HUNTINGTON'S DISEASE What is Huntington's Disease? Huntington's Disease (HD) is a brain disorder that affects a person's ability to think, talk, and move. The disease destroys cells in the basal ganglia, the part of the brain that controls movement, emotion, and cognitive ability. HD is caused by a mutation in a gene on chromosome 4. The job of its protein product, huntingtin, is to direct the delivery of small packages (vesicles containing important molecules) to the outside of the cell. Normally, the coding region of this gene contains the DNA sequence "CAG" repeated again and again. The number of times this triplet is repeated varies from person to person, ranging from 10 to 26 times. People with HD have an abnormally high number of these CAG triplets, approximately 40 or more. This likely disrupts the function of the gene's protein product, but how the expansion of the CAG repeat causes disease is unknown. Somehow the brain cells of HD patients accumulate clumps of protein that become toxic, resulting in cell death. Some patients lose more than 25% of their brain cells before they die. How do people get Huntington's Disease?

58. Welcome | Centre For Molecular Medicine And Therapeutics Dedicated to the practice of discovery research contributing to the fundamental knowledge in the determination and control of genetic susceptibility to disease. Objectives, research programs, news and events, core facilities, Huntington Disease Medical Clinic, fellows, students, faculty and staff. http://cmmt.ubc.ca

59. Huntington's Disease: Movement Disorders: Merck Manual Home Edition Huntington's disease (Huntington's chorea) is a hereditary disease that begins with occasional involuntary jerking or spasms, then progresses to more pronounced involuntary http://www.merck.com/mmhe/sec06/ch091/ch091j.html

60. Huntington's Disease - Symptoms, Diagnosis, Treatment Of Huntington's Disease - Free articles and multimedia from The NY Times, including information on symptoms, diagnosis, treatments, tests, and surgical procedures, as well as current news and interviews http://health.nytimes.com/health/guides/disease/huntingtons-disease/overview.htm

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