41. Rett Syndrome Research Trust Blog Welcome to the RSRT Blog. RSRT is a 501(c)(3) nonprofit organization intensively focused on the development of treatments and cures for Rett Syndrome and related MECP2 disorders. http://rettsyndrome.wordpress.com/

Rett Syndrome Research Trust Blog Welcome to the RSRT Blog. RSRT is a 501(c)(3) nonprofit organization intensively focused on the development of treatments and cures for Rett Syndrome and related MECP2 disorders. The strength of the Trust is based on the guidance of founders and advisors who are largely responsible for the major advances in Rett research over the past decade. Home RSRT Interview Series Subscribe to feed RETT SYNDROME IN A PETRI DISH November 12, 2010 in interviews Alysson Muotri drug repurposing Fred Gage ... RETT SYNDROME RESEARCH TRUST WEBSITE On November 11th the high-profile journal Cell published a paper by Alysson Muotri, Ph.D. entitled A Model for Neural Development and Treatment of Rett Syndrome Using Human Induced Pluripotent Stem Cells . The stem cell field has seen amazing progress in the last few years. Induced Pluripotent Stem Cells (iPS cells) is an especially hot area because of the clinical implications. Simply put, iPS cells allow you to study diseased cells up close and personal through their entire lifecycle. Importantly, any deficits that are identified in the cells can be used as read-outs in drug screening endeavors. I’ve had the pleasure of knowing Dr. Muotri for a number of years, in fact since his introduction to Rett about six years ago. He became interested in the disorder while doing his post-doc in the lab of Fred (Rusty) Gage at the Salk Institute in La Jolla, CA. Thankfully his interest has continued now that he is an independent investigator at UCSD.

42. Stacey Foster - My Life Story Young woman living with Rett Syndrome. http://www.cleveleys.co.uk/staceyfoster/

Welcome to Stacey's web site. www.rettsyndrome.org.uk *New page added My Life Story Sign My Guestbook ... Contact

43. The Sarah Varon Foundation For Rett Syndrome Research A family dedicated to finding a cure. Find announcements, photos, and an overview of the disease. http://www.sarahvaronfoundation.org/

The Varon Family Sarah with her sisters, cousins and grandparents The Sarah Varon Foundation for Rett Syndrome Research The race to find a cure for Rett Syndrome Announcements Donations Photos Parents' Message ... Resources Overview and Mission Watch a CBS show on Rett Syndrome featuring Sarah. Our mission is to find the cure for Rett Syndrome. Rett Syndrome is a genetic neurological disorder that randomly strikes 1 in 10,000 girls within the first two years of life. Though Rett Syndrome may affect males, few are known to survive pregnancy. There is no cure. Our best hope is through research to understand and develop an effective therapy to find the cure. Sarah, our daughter, was born on Sunday, May 20, 2001. On Thursday, December 5, 2002, Sarah tested positive for Rett Syndrome The Sarah Varon Foundation for Rett Research's beliefs and purposes are the following: The belief that the cure for Rett Syndrome is within ten years To support, encourage, fund, and accelerate research for the treatment and cure for Rett Syndrome To increase public awareness of Rett syndrome Thank you for your help in finding the cure for Rett Syndrome.

44. Your Daughter Has Been Diagnosed With Rett Syndrome A first person perspective of dealing with a diagnosis of Rett Syndrome and coping mechanisms. http://www.yourdaughterhasretts.com/

45. Rett Syndrome / Family Village Library Who to Contact. International Rett Syndrome Association 9121 Piscataway Rd Suite 2B Clinton MD 20735 1800-818-7388 301-856-3334 301-856-3336 (Fax) E-mail irsa@rettsyndrome.org http://www.familyvillage.wisc.edu/Lib_rett.htm

46. Das RETT-Syndrom :: www.rett.de Die Elterninitiative stellt Informationen zum Rett-Syndrom, zu Therapien und zur Alltagsbew ltigung bereit, geht auf Fragen des Behindertenrechts ein und f rdert den interaktiven Austausch in einem Forum, Chat und Mailingliste. http://www.rett.de/

kleine Schrift normale Schrift Suche Rett unterstützen Forum Login Das RETT-Syndrom ... Mitgliederbereich Kennen Sie ein Mädchen, das sich nach normaler Geburt und Entwicklung in den ersten Lebensmonaten plötzlich verändert hat? das sich nicht mehr weiterentwickelt, sich "irgendwie anders" verhält, als zwischen dem 6. und 18. Lebensmonat zu erwarten? das bereits erworbene Fähigkeiten wie Laufen und Sprechen wieder verlernt hat? ein Mädchen, das ganz normal aussieht, das aber den sinnvollen Gebrauch der Hände verloren und statt dessen stereotype, knetende oder waschende Handbewegungen macht? Dann könnte dieses Mädchen eines von ca. 50 Mädchen sein, die pro Jahr in Deutschland am RETT-SYNDROM erkranken. Diagnose Elternhilfe Was macht die Elternhilfe? Die Elternhilfe informiert Betroffene und Interessierte über das Rett-Syndrom und fördert auf unterschiedliche Weise den Erfahrungsaustausch zwischen den Eltern. Dadurch wird der Isolierung der Familien entgegengewirkt, die nach der Diagnose häufig droht. Verein RehaCare in Düsseldorf Wir waren auf der RehaCare in Halle 4 Stand B33 mit einem Stand vertreten.

47. Home Rett Syndrome is a complex neurological disorder which occurs mainly in females and affects them throughout their lives. Sufferers are profoundly and multiply disabled and http://www.rettsyndrome.eu/

home who we are members missing ... contact Rett Syndrome is a complex neurological disorder which occurs mainly in females and affects them throughout their lives. Sufferers are profoundly and multiply disabled and totally dependent on others for their needs. This site is dedicated to the support of such girls and women, their families and carers. 2nd European Rett Syndrome Conference October, 2010 Edinburgh, Scotland click here Click on the country of your choice ACCOUNT: 000100661538 Dell'Oro Oliviero, Treasurer of RSE Rett Syndrome Europe - UNICREDIT BANCA - IBAN: IT 92 P 02008 11770 000100661538 - BIC SWIFT: UNCRITB1M01

48. Österreichische Rett-Syndrom Gesellschaft Aufkl rung ber die Diagnostik und Krankheitsverlauf der Entwicklungsst rung unter Bezugnahme genetischer Aspekte und Infos zu den Aktivit ten der Vereinigung. http://www.rett-syndrom.at/

Home Was ist das Rett-Syndom? Diagnosestellung Krankheitsverlauf ... Links zu anderen Rett-Seiten Ruthnergasse 20A A-1210 Wien Der neue Rundbrief ist da! Rundbrief herunterladen. Kontakt Tel.+ Fax: +43 (0)1 47 93 622 Mobil: +43 (0)676 96 70 600 Webmaster: Andreas Wirth , Dezember 2009

49. WE MOVE - Rett Syndrome Rett syndrome (RS) is a progressive neurodevelopmental disorder that occurs almost exclusively in females. The disorder was originally described by Dr. Andreas Rett of Austria in http://www.wemove.org/rett/

50. Rett Center Information om syndromet och om centerns arbete med patientgruppen. stersund. http://jllweb02.jll.se/rett/

START RETT SYNDROM RETT CENTER KONTAKT ... IN ENGLISH Rett syndrom Syndromet i dess klassiska form ses i stort sett endast hos flickor. nationellt

51. Insieme Organisation, die sich f r Menschen mit geistiger Behinderung, Down- oder Rett Syndrom, aber auch zu anderen Behinderungsarten stark macht. 2501 Biel http://www.insieme.ch/

@import url(http://www.insieme.ch/wp-content/plugins/wp-table/wp-table.css); Insieme swfobject.embedSWF("wp-content/themes/insieme/flashvisual/flashvisual.swf", "myContent", "976", "352", "9.0.0", "wp-content/themes/insieme/flashvisual/expressInstall.swf"); Aktuell Assistenzbeitrag: Zugang für alle SGK sieht punktuelle Verbesserungen vor. Mehr IV-Anlehren im Visier «Nel giardino dei suoni» Preis für "Üsi Badi" Politisches Engagement Invalidenversicherung insieme macht sich für eine stabile und soziale Invalidenversicherung stark. Sie ist für Menschen mit geistiger Behinderung existenziell. Mehr Berufliche Integration Leben im Alltag In der Schule Ein Kind kommt ins Schulalter – und die Frage stellt sich, welche Möglichkeiten der Schulbildung einem Kind mit geistiger Behinderung offen stehen. Mehr Alt werden Geschwister Sexualität Quicklinks Regionale Vereine Ferienangebot Spenden insieme Magazin ... Intranet

52. Rett Syndrome Penn State Children's Hospital provides world class care and services to patients. http://www.hmc.psu.edu/childrens/healthinfo/r/rhett.htm

53. Web Site Currently Not Available ber die Familie Ufer und die heute 18-j hrige Jennifer, die seit ihrem 3. Lebensjahr an Rett Syndrom erkrankt ist, wird berichtet. http://www.ufergummersbach.de/

54. Rett Syndrome Article describes Rett syndrome, its symptoms, diagnosis, treatment, and research being done to understand it. http://rarediseases.about.com/od/rettsyndrome/a/rettsyndrome.htm

zWASL=1;zGRH=1 zJs=10 zJs=11 zJs=12 zJs=13 zc(5,'jsc',zJs,9999999,'') zDO=0 Home Health Rare Diseases Rare Diseases Search Rare Diseases Diseases A-Z Pediatric Diseases In the News ... Share w(x2+zWl+'?p=1" zT="18/1[N" rel="nofollow">Print') Discuss in our Forum Apply now to guide this site Neurological disorder occurs mainly in females From Mary Kugler, R.N. , former About.com Guide Updated October 22, 2006 About.com Health's Disease and Condition content is reviewed by our Medical Review Board See More About: nervous system disorders genetic disorders zSB(3,3) Rett syndrome is a genetic disorder which mainly affects the brain and nervous system. The gene for Rett syndrome, called MECP2, was identified in 1999. It is on the X (female) chromosome, so it is mostly females who are diagnosed with Rett syndrome, although it can occur in males. In most cases, a child born with Rett syndrome is the only one in her family with the disorder. Rett syndrome occurs in people of all ethnic backgrounds. Studies estimate that Rett syndrome occurs in anywhere from 1 in 10,000 to 1 in 23,000 individuals worldwide. Symptoms Rett syndrome is usually not apparent at birth. In fact, many infants appear to have normal development up until about age 6-18 months. For some children, the symptoms come on quickly, and parents can note specific dates when particular symptoms began. For other children, the changes come more slowly.

55. Blue Bird Circle Clinic For Pediatric Neurology Attached to the Texas Children s Hospital, Houston, USA. Includes details of specialist clinics for children with Rett Syndrome, epilepsy, sleep disorders and developmental problems. http://www.texaschildrenshospital.org/carecenters/Neuro/Neurology/Default.aspx

Find a Doctor Refer a Patient Contact Us Newsroom ... En EspaÑol //***********************Site Catalyst******************************** //page specific variables go here still s.pageName = " care centers:neuro:neurology:landing page"; s.channel = " care centers"; s.prop1 = " care centers:neuro"; s.prop2 = " care centers:neuro:neurology"; //******************************************************************** Home About Texas Childrens Care Centers For Parents ... Contact Us Neurology and Developmental Neuroscience TRANSFORMING NEUROLOGICAL CARE FOR CHILDREN Texas Children's Neurology and Developmental Neuroscience integrates outstanding patient care with innovative research and first-rate training to develop new treatments and cures for children with neurological and neurodevelopmental disorders. Ranked #4 in the US Learn More See the full rankings by U.S. News

56. My Child Without Limits: Rett Syndrome Rett syndrome is a disorder that begins in childhood and mostly affects females. Over time children with the condition lose intentional use of the hands and speech, have http://www.mychildwithoutlimits.org/?page=rett-syndrome

57. En Verden Set Fra En Cykel Artikel om et p dagogisk handlingsforl b med en pige med Rett syndrom. http://www.somet.dk/paedagogik/art_enverdenset.htm

58. Rett Syndrome Association Of Illinois State organization that provides support for those affected by this neurological disorder that occurs predominantly in girls. Includes an events calendar, programs and services, and contacts. http://www.rettillinois.org/

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59. Rett Syndrome Symptoms, Causes, And Treatments WebMD explains what causes Rett syndrome, a rare form of autism that affects only girls. Plus, here you'll learn about the symptoms and treatments as well as what to expect if http://www.webmd.com/brain/autism/rett-syndrome

60. Rett Syndrome Research Trust Rett Syndrome Research Trust is a nonprofit organization intensively focused on the development of treatments and cures for Rett Syndrome and related MECP2 disorders. http://rsrt.org/

About RSRT Rett Syndrome Curing Rett disorders ... Donors Now imagine these symptoms vanishing ... one by one. This is the work of the Rett Syndrome Research Trust. We welcome the commitment of an army of informed supporters. Register with us to stay apprised of the latest research news. AC_FL_RunContent( 'codebase','http://download.macromedia.com/pub/shockwave/cabs/flash/swflash.cab#version=9,0,28,0','width','450','height','67','src','ticker','quality','high','pluginspage','http://www.adobe.com/shockwave/download/download.cgi?P1_Prod_Version=ShockwaveFlash','movie','ticker' ); //end AC code HHMI/Paul Fetters contact us blog register site map In 1999, RSRT Scientific Advisory Board member Huda Zoghbi established the link between the MECP2 gene and Rett Syndrome. In 2007, RSRT Trustee, Adrian Bird, dramatically reversed Rett Syndrome symptoms in mice. RSRT is a 501c3 nonprofit research organization exclusively focused on the development of treatments and cures for Rett Syndrome and related MECP2 disorders The strength of the Trust is based on the guidance of our founders and advisors portfolio of key research projects including the first foray into drug development for Rett Syndrome. The Trust has also launched a series of international scientific think tanks.

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