Home - Health_Conditions - Facial Differences |
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81. Romberg S Syndrome General information, contacts, on-line discussion groups and links. http://www.familyvillage.wisc.edu/lib_rombs.html |
82. Parry Romberg Syndrome Stories from people affected by Parry Romberg syndrome, support and information. http://www.cannylink.com/diseaseparryromberg.htm |
83. The Romberg S Connection International support group for families whose lives are affected by Romberg s syndrome. http://www.therombergsconnection.com/ |
84. Langer-Giedion Syndrome Association International network of families and professionals providing information and support to people affected by this condition. Provides contact details and links to resources. http://www.kumc.edu/gec/support/langer_g.html |
85. Treacher Collins Syndrome - A Personal View Information, personal insight, discussion forum and the exclusive TCS Around the World feature. http://www.treachercollins.co.uk |
86. Microtia - Congenital Ear Institute Information on microtia for families and health care providers. Spanish version as alternative. http://www.microtia.net |
87. The Treacher Collins Family Support Group Information regarding the syndrome, genetics, hearing aids, links and support groups. http://www.treachercollins.net |
88. Stickler Involved People Medical information, networking, news and updates. http://www.sticklers.org/ |
89. Stickler Syndrome Support Group Information and support for people affected by Stickler Syndrome. UK-based, but with international links. http://www.stickler.org.uk |
90. Stickler Syndrome Outreach - Oregon Reaching out to those in Oregon who are affected by Stickler s Syndrome. http://oregonsticklers.homestead.com |
91. The Craniofacial Group - Paris, France Craniofacial Group; Management of anomalies of skull and face craniosynostosis, facial clefts, hypertelorism, tumors and trauma. http://www.cranio-facial.org/ |
92. Parents Of Children With Craniosynostosis (PCC) Offers information and support about craniosynostosis. For families in Eastern Idaho and parts of Utah. http://pcc2000.org.tripod.com/ |
93. Cranio Surgery Support Offers information, help, and support for parents of children with craniosynostosis. Includes a photo diary of the events following Sydney s surgery in 2003. http://www.stlhorton.com/ |
94. Jorge Posada Foundation Craniosynostosis The foundation aims to raise awareness of this congenital defect and provides families and affected children with emotional support and financial assistance. http://www.jorgeposadafoundation.org/craniosynostosis/ |
95. Craniosynostosis And Plagiocephaly Support Site set up by two Manitoba women whose children were diagnosed and treated for craniosynostosis. Includes information on the conditions, therapies, FAQ, surgery stories and offers somebody to talk to. http://www.cranioplagiosupport.com/ |
96. Cranio Kids Group started by a mother and father looking for information on craniosynostosis. Offers fun, friends and craniosynostosis support. Includes a forum and blog. http://www.craniokids.org/ |
97. CleftPALS QLD Inc. Australian voluntary group, comprising parents, relatives and professionals interested in the welfare of children born with cleft related conditions. Includes information on clefts, membership, the newsletter and personal stories. http://homepage.powerup.com.au/~cleftpal/ |
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