Home - Health_Conditions - Muscular Dystrophies |
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81. Jeff Grey Jeff s experiences with Duchenne Muscular Dystrophy, especially medical and equipment issues including non-invasive ventilators. http://members.tripod.com/~Nivusers/Infob/Myinfo.html |
82. The Jones Family DMD Site Learn how a family copes with Duchenne Muscular Dystrophy in son, Bradley. Bradley is about 7 years old. http://mom-of-bradley.tripod.com |
83. Whose World Is Sadbatu? Digital art (2D and 3D) by Georg Niedermeier who suffers Duchenne muscular dystrophy. http://www.sadbatu.de/ |
84. Mastery Of Life The personal story of Allan H. Macurdy who by taking control of his own health care decisions, made a major step in learning to live with muscular dystrophy. http://www.mda.org/publications/Quest/q61mastery.html |
85. Duchenne Family Support Group For families affected by Duchenne muscular dystrophy. Minimal information online but telephone helpline numbers supplied. http://www.dfsg.org.uk/ |
86. Ryan S Cafe A young man with Duchenne Muscular Dystrophy who s interested in the internet, reading, music, coffee and his own web design business. A fan of James Bond, he s created a filmography database for the movies. Chat room. Australia. http://www.mda.org.au/cafe/ |
87. Facio Scapulo Humeral Muscular Dystrophy (FSH-MD) Support Group Patients, families and carer run group, supporting those with FSH-MD. Disease information, newsletters, events and message board on-line. http://www.fsh-group.org/ |
88. Muscular Dystrophy Canada McArdle S Disease Article providing information on this condition that causes severe muscle pain and cramping, the symptoms, complications, genetic inheritance and treatments. http://www.muscle.ca/fileadmin/National/Muscular_Dystrophy/Disorders/McArdles_E. |
89. National Registry Of Myotonic Dystrophy And FSHD Patients And Family Members Connecting researchers and patients. Participation, purpose, investigators, personnel and contact information. http://www.urmc.rochester.edu/nihregistry/ |
90. Cure Duchenne Founded by parents of a patient, to raise funds for research. California. http://www.cureduchenne.org/ |
91. Action Duchenne Promotes awareness, raises funds, and offers an online community for patients and parents. Based in the United Kingdom. http://www.actionduchenne.org/ |
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